With reference to opting out of NHS Digital's use of confidential patient information for research and care planning, please see below:

The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data, called the General Practice Data for Planning and Research data collection.

Further information is available at: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/transparency-notice

If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both.

Type 1 Opt Out means NHS Digital will not collect data from your GP practice. Your opt out must be registered before the date of collection (which has recently been changed to the 1st of September). If a type 1 opt out is registered after this date, no extraction will occur from the date but NHS Digital will still hold data extracted before the opt out date. 

To submit a Type 1 opt-out preference please submit the form below to the surgery. If you wish to opt out before initial collection starts, please submit this no later than the 24th of August.  A link to the form is below which can be emailed to This email address is being protected from spambots. You need JavaScript enabled to view it.:

https://nhs-prod.global.ssl.fastly.net/binaries/content/assets/website-assets/data-and-information/data-collections/general-practice-data-for-planning-and-research/type-1-opt-out-form.docx

National Data Opt Out means that NHS Digital will not share any confidential patient data it holds but will collect data from your GP medical record to use for its own service planning and research purposes. If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out.

To submit a National Data Opt Out preference, please use this link: https://www.nhs.uk/your-nhs-data-matters/

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